Data Sharing Review

[Peter Fairbrother]

Michael Simpson wrote:

>>> As a medic with an interest in developing an electronic patient
>>> register 

Why do you want one?

What's it for?

I guess that's the main question.


i would be unhappy with the concept of any data sharing
>>> without the specific consent of the patient being given *every* time
>>> that their data is to be accessed by anyone.
>>
>> There are two definite problems there:-
>>
>> 1.  that when the patient is present they will almost always have some
>> agenda, and substituting gaining consent to look at their records for
>> their opening remarks is bad.
>>
> 
> I agree however if the system was based on some sort of biometric
> marker then it would become automatic.

... ptui! ;(

Data once shared, and thenceforward outside the control of the person 
who generated the data, can be used and reused for purposes the person 
never envisaged. If it's definitively linked to an individual by 
biometric means, the individual can never grow beyond it.

> When i see a patient for the first time then i have to ask their
> permission to share their info with social work.

What if they don't give permission? Do you refuse to treat them?

> With a fair proportion of them they interprete this as "tell me about
> your drug use so that i can tell social work to come and remove your
> children"
> I have become very good at reassuring people about how their data will
> be used in this instance.

Do you know how their data will be used by the soche? Who the soche will 
share the data with? Who on the soche might have other uses for the data?



(born and bred)
(there is a point to this harassment)

-- Peter Fairbrother