Data Sharing Review

[Mary Hawking]

Michael Simpson said

>As a medic with an interest in developing an electronic patient 
>register i would be unhappy with the concept of any data sharing 
>without the specific consent of the patient being given *every* time 
>that their data is to be accessed by anyone.

There is another problem about data sharing - the quality of the data to 
be shared.
Mark Walport does not appear to have considered this as far as medical 
data goes - and medical data is, by it's very nature, imprecise, fuzzy 
and open to different interpretations in different parts of the health 
care system.

Drug services are a case in point (cheer up, this problem only applies 
in England - so far)

Data sharing of appropriate data in appropriate ways to support 
individual patient care is not and never has been a problem.
Extending this to include *all* medical information to *all* health care 
providers (and pharmaceutical companies) is something different - and 
single shared records - the Detailed Care Record model in NME - Lorenzo 
level 4 and TPP - is a different problem again.

Changing goal-posts - have you seen the Darzi review on Vision for 
Primary and Secondary Care para 7.6? Access to the National Care Record 
service - which includes both summary and detailed care records - to be 
extended to social services and voluntary organisations.

</rant>
see my presentation at the PHCSG summer conference - www.phcsg.org.uk 
the Conferences - summer conference - program and day 1 stream 2 15.20

(Michael, I'll send it to you off line)

Mary Hawking


-- 
Mary Hawking