Data Sharing Review

[Michael Simpson]

Hello

answers inline

On Mon, Jul 14, 2008 at 6:20 PM, Peter Fairbrother
<zenadsl6186@zen.co.uk> wrote:
> Sorry for the half-double post, sticky keyboard.
>
> Michael Simpson wrote:
>>
>> On 7/12/08, Mary Hawking <maryhawking@tigers.demon.co.uk> wrote:
>>>
>>> The report on data sharing commissioned from Dr Mark Walport (Welcome
>>> Trust)
>>> and Richard Thomas has been published: hardly surprisingly - seeing the
>>> interests of one of the authors - it is very keen to allow researchers
>>> full
>>> access to medical records - and seems to think that these will be held on
>>> a
>>> central database for the whole of England. I don't think there is the
>>> full
>>> support for making medical records available for research among the
>>> medical
>>> profession that is claimed.
>>>
>>
>> As a medic with an interest in developing an electronic patient
>> register i would be unhappy with the concept of any data sharing
>> without the specific consent of the patient being given *every* time
>> that their data is to be accessed by anyone.
>
> While that's an almost hippy-ish goal, it's not strictly necessary - there
> are times when giving out patient data simply isn't intrusive.
>
> Though the present "data mob", if I may coin a phrase, have no clue when
> that is - admittedly the line isn't easy to draw, but it's not in the same
> universe as what they propose.
>
> So it may be necessary after all.
>

i think it is necessary rather than some sort of tick here if you
don't wish us to give your details to any interested third party
i'm very big on the idea of informed consent

>>
>> The state seems to have real problems with the idea of accountability
>> and without clear mechanisms in place to implement *all* of the 3As
>> and a demonstration of what they actually mean then it would be my
>> view that any current proposals are flawed.
>
> What's the 3A's?
>
Authentication, authorisation and accountability

>> cf recent House of Lords ruling on FOI attempt to access info on
>> leukaemia clusters + all 999 call data from Scotland being lost in
>> transit without any real reason for sending live data to a third party
>> by post in the first place.
>>
>> Mike Simpson
>> Medical Officer - Glasgow Addiction Service
>
> I'd not let the soche send me for that job!
>
slightly better than being abused and beaten up by the public in A&E
:-)

mike

> -- Peter Fairbrother
>
>> also not one of the "medical mob"
>>
>>
>
>
>