Data Sharing Review

Mary Hawking ukcrypto at chiark.greenend.org.uk
Sat, 12 Jul 2008 19:04:40 +0100


The report on data sharing commissioned from Dr Mark Walport (Welcome 
Trust) and Richard Thomas has been published: hardly surprisingly - 
seeing the interests of one of the authors - it is very keen to allow 
researchers full access to medical records - and seems to think that 
these will be held on a central database for the whole of England. I 
don't think there is the full support for making medical records 
available for research among the medical profession that is claimed.

Http://www.justice.gov.uk/reviews/datasharing-intro.htm

(I found the evidence submitted by GeneWatch very interesting.

http://www.genewatch.org/uploads/f03c6d66a9b354535738483c1c3d49e4/GeneWat
chUK_datarev08.doc
especially 1(vi))

The thought of legislation to allow the Sec. of State to fast track 
secondary legislation and change primary legislation and common law to 
fit this sharing is alarming: and the thought that this might actually 
be implemented drives me to despair!

Mary Hawking
GP but *not* one of the "medical mob"!
-- 
Mary Hawking